France
Fibromyalgie France Street: 11, avenue de la Soeur Rosalie District: 75013 Paris Country: France Phone: 0033 0143314702 E-mail: fibromyalgie.france@wanadoo.fr Website: http://fibromyalgie-france.org |
Board members:
| President name: Carole S. Robert Secretary: Brigitte Gabin Treasurer: Jean Gabaud Adjunct Secretary: Serge Robert |
History:
Fibromyalgie France - Ufaf was founded in 2001. At first, the association was regional. Carole Robert, the president, proposed that a national association be created in order to be able to communicate officially with the French Institutions and the national medias. More precisely, meetings were arranged with the Ministry of Health and the Ministry of Work in France in order to raise awareness about the reality of a fibromyalgia patient's daily life.
Objectives
- Raise awareness concerning fibromyalgia and its consequences on family, social and professional daily life.
- Create and develop all forms of research, mutual assistance, information and claims.
- Contribute to raising awareness on medical or social issues.
- Be the spokesmen for institutions and national medias.
Achievements, Activities and Events:
Before 2008
| Activity name | Objectives | Date | Venue |
| Publication of the book "Fibromyalgia the patients want to understand" | General knowledge of fibromyalgia by the French population | 2003 | France |
| Participation in the creation of a public file concerning fibromyalgia | Knowledge of fibromyalgia syndrome for patients, their families and their doctors | 2006 | France |
| Acknowledgement of fibromyalgia by the | Obtaining recommendations for the management of | 2007 | France |
| National Academy of Medicine | fibromyalgia | ||
| Open letter to the French president | Knowledge of fibromyalgia and our actions from institutions and medias, on a national, regional and local level. | 2007 | France |
In 2008
| Activity name | Objectives | Date | Venue |
| 1st European Fibromyalgia round table discussion at the European Parliament | Raising awareness at the European Level | 7th May 08 | Brussels, Belgium |
| International Fibromyalgia Day | Raising awareness! | 12th May 08 | Paris |
| EULAR (European League Against Rheumatism): Intervention | International press event and symposium | 12th June 08 | Paris |
| Publication of the book "Fibromyalgia such a long way for the patients" | Partnership between doctors and patients | Sept 08 | France and Europe |
Future activities
| Activity name | Objectives | Date | Venue |
| Fibromyalgia International Day 2009 | Raising awareness! | May 2009 | France |
| Participation in taking charge of fibromyalgia patients in a medical center | Improvement of the Chronic Illness patients' quality of life | Sept 2009 | France |
Expectations from the Network
We expect the net to become a link between the European associations and the European parliaments. It will also be a leader for the fibromyalgia cause in Europe and the world.
About us
Activities
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18th February 2012
European Network of Fibromyalgia Associations General Meeting
European Network of Fibromyalgia Associations General Meeting
February 18th 2012
Arora Hotel Heathrow London
The ENFA committee is pleased to announce that the General assembly meeting will take place on Saturday 18th February 2012. This will be an all day meeting and we would recommend that members arrive on the Friday evening.
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09th June 2012
EULAR Congres 
Representatives of ENFA will visit the Eular conference