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European Network of Fibromyalgia Associations

Latest News

May 12 Activities around Europe

  On this page you can find various activities that will take place in some European countries for the International Fibromyalgia Awareness Day.All the activities exposed here are organized by our network members.If you want to participate in one of these events, contact the corresponding association. Italy Associazione AISF ODV (Associazione Italiana Sindrome Fibromialgica) with other…

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European Campaign

Participate in our European campaign!   Follow the steps outlined in the image and send your photo by private message or to 2008enfa@gmail.com  If you don’t have Fibromyalgia and support the cause, you can also participate! Let’s show the faces of Fibromyalgia! Let’s unite European patients!  (The photos will be posted on a dedicated album on…

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Statements

Fibromyalgia is common and an enormous clinical burden for both patients and society. It is a very complex disease with a variety of symptoms in addition to the defining symptom – chronic widespread pain. These include fatigue, non-restorative sleep, morning stiffness, irritable bowel and bladder, restless legs, depression, anxiety and cognitive dysfunction often referred to as “fibro fog”. All of these symptoms cause serious limitations in patients’ ability to perform ordinary daily chores and work and severely affect their quality of life. The burden on healthcare and society is high. Research in the UK has shown that diagnosis and positive management of fibromyalgia reduces healthcare cost by avoiding unnecessary investigations and consultations. Yet a recent global survey showed that healthcare professionals lack confidence in diagnosing and managing fibromyalgia. The average time from development of symptoms to diagnosis is over 2 years with unnecessary medical referrals and investigations. Educating the public, patients and healthcare professional to promote better recognising and management of fibromyalgia will benefit patient, healthcare providers and society.

Professor Ernest Choy
Head of Rheumatology and Translational Research
School of Medicine, Cardiff University

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