Nadine Chard’Homme, President of FOCUS Fibromyalgie Belgique, shared with ENFA the news that a Royal Decree in Belgium which drastically reduced access to physiotherapy has been overturned. Please take a look at their press release below, modified for clarity in language. “We are happy to announce that, in its judgment number 245.099 dating July 4, 2019, the Council…
DetailsEarlier this year, several ENFA members attended the 22nd EULAR Annual European Conference of PARE, held in Prague, Czech Republic between April 5th and 7th, 2019. Here, ENFA Secretary Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. Hosted by the Czech League Against Rheumatism, the 22nd Annual European Conference…
DetailsFibromyalgia is common and an enormous clinical burden for both patients and society. It is a very complex disease with a variety of symptoms in addition to the defining symptom – chronic widespread pain. These include fatigue, non-restorative sleep, morning stiffness, irritable bowel and bladder, restless legs, depression, anxiety and cognitive dysfunction often referred to as “fibro fog”. All of these symptoms cause serious limitations in patients’ ability to perform ordinary daily chores and work and severely affect their quality of life. The burden on healthcare and society is high. Research in the UK has shown that diagnosis and positive management of fibromyalgia reduces healthcare cost by avoiding unnecessary investigations and consultations. Yet a recent global survey showed that healthcare professionals lack confidence in diagnosing and managing fibromyalgia. The average time from development of symptoms to diagnosis is over 2 years with unnecessary medical referrals and investigations. Educating the public, patients and healthcare professional to promote better recognising and management of fibromyalgia will benefit patient, healthcare providers and society.
Professor Ernest Choy
Head of Rheumatology and Translational Research
School of Medicine, Cardiff University
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