International Fibromyalgia Awareness Day 2020

May 12th is International Fibromyalgia Awareness Day, which derives from the May 12th International Awareness Day. May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The CIND illnesses include Fibromyalgia, Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Gulf War Syndrome (GWS) and Multiple Chemical Sensitivity (MCS).

Mateja Kržan elected to the EPF Ethics Committee

ENFA Board Member Mateja Kržan was recently elected to the newly formed European Patients’ Forum (EPF) Ethics Committee, during the EPF 2020 Virtual Annual General Meeting. Mateja joins Amanda Bok (European Haemophilia Consortium), Anita Arsovska (Stroke Alliance for Europe), Birgit Dembski (BAG SELBSTHILFE) and Stella de Sabata (International Diabetes Federation Europe) as the five elected members of the committee…

EPF Capacity Building Module on Empowering Leadership and Positive Governance

Ricardo Fonseca, President of Myos – the National Association against Fibromyalgia and Chronic Fatigue Syndrome (Portugal) and member of the board of ENFA, participated in the EPF Capacity Building Module on Empowering Leadership and Positive Governance, organised by the European Patient’s Forum, in 2019. This training lasted 6 months and two face-to-face meetings were held…

Victory for people with fibromyalgia in Belgium

Nadine Chard’Homme, President of FOCUS Fibromyalgie Belgique, shared with ENFA the news that a Royal Decree in Belgium which drastically reduced access to physiotherapy has been overturned. Please take a look at their press release below, modified for clarity in language. “We are happy to announce that, in its judgment number 245.099 dating July 4, 2019, the Council…

22nd EULAR Annual European Conference of PARE

Earlier this year, several ENFA members attended the 22nd EULAR Annual European Conference of PARE, held in Prague, Czech Republic between April 5th and 7th, 2019. Here, ENFA Secretary Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. Hosted by the Czech League Against Rheumatism, the 22nd Annual European Conference…

Fibromyalgia2019 Conference

Several ENFA members recently attended The International Congress on Controversies in Fibromyalgia, held in Vienna, Austria between March 4th and 5th, 2019. Here, ENFA member Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. We gathered in Vienna, Austria for ‘The International Congress on Controversies in Fibromyalgia’, a congress focusing…

EPF Capacity Building Module 2019

ENFA Board Member, Ricardo, recently attended the first face-to-face meeting of the European Patients’ Forum Capacity Building Module 2019 on Empowering Leadership and Positive Organisational Governance. Over the next six months, Ricardo and other course members will receive six sessions of online coaching, before a second face-to-face meeting in September 2019. Here’s what Ricardo thought……