Mateja Kržan elected to the EPF Ethics Committee

ENFA Board Member Mateja Kržan was recently elected to the newly formed European Patients’ Forum (EPF) Ethics Committee, during the EPF 2020 Virtual Annual General Meeting. Mateja joins Amanda Bok (European Haemophilia Consortium), Anita Arsovska (Stroke Alliance for Europe), Birgit Dembski (BAG SELBSTHILFE) and Stella de Sabata (International Diabetes Federation Europe) as the five elected members of the committee…

EPF Capacity Building Module on Empowering Leadership and Positive Governance

Ricardo Fonseca, President of Myos – the National Association against Fibromyalgia and Chronic Fatigue Syndrome (Portugal) and member of the board of ENFA, participated in the EPF Capacity Building Module on Empowering Leadership and Positive Governance, organised by the European Patient’s Forum, in 2019. This training lasted 6 months and two face-to-face meetings were held…

EPF Capacity Building Module 2019

ENFA Board Member, Ricardo, recently attended the first face-to-face meeting of the European Patients’ Forum Capacity Building Module 2019 on Empowering Leadership and Positive Organisational Governance. Over the next six months, Ricardo and other course members will receive six sessions of online coaching, before a second face-to-face meeting in September 2019. Here’s what Ricardo thought……