AISF-ONLUS Associazione Italiana Sindrome Fibromialica
President: Piercarlo Sarzi Puttini; email@example.com
Executive vice president, in charge of contacts and representative at ENFA: Egidio Riva; firstname.lastname@example.org
Scientific vice president: Marco Cazzola
Treasurer: Antonella Luppino email@example.com
Secretary: AnnaMaria Beretta firstname.lastname@example.org
Board member: Alessandra Alciati
Board member: Alberto Batticciotto
Board member: Gianantonio Cassisi
Board member: Simonetta Panfi
Board member: Pierangelo Sgiarovello
The Association started in 2002 and on 30/11/ 2005 it was renamed ONLUS Association. The Association is recognized as a National Association for Fibromyalgia patients, but every region in Italy has a regional association. The main objective of this organization has been, and is, to organize the patients’ group in order to understand the disease and related problems and to support the patients.
- To organize the patients in order to achieve National recognition of Fibromyalgia by the National Health Association (Ministero della Salute).
- To support the patients in the treatment of the disease through meetings, congress and presentations, etc.
Achievements, Activities and Events:
|National Congress||To explain the disease and the therapy||15/03/08||Milan|
|Regional Congres||To relate with the regional city||31/05/08||Menfi (Sicily)|
|Regional Congress||To relate with the regional city||18/07/08||Cagliari (Sardinia)|
|Meeting of National Association of Rheumatic Disease||To explain the disease and the therapy||04/10/08||Milan|
|1st European World Fibromyalgia Day 2008||Raising awareness at the European Level||7th of May 08||Brussels, Belgium|
|National Congress||To explain the new therapy||March 2009||Milan|
|Regional Congress||To explain the national objective||May||Sicily|
|Regional Congress||To explain the new therapy||June||Cagliari|
|Regional Congress||To explain the new therapy||14/02/09||Trento|
|The meetings with the National Association of the patients with Rheumatic disease|
|National Congress on Fibromyalgia||every year in spring time|
|complete program on www.sindromefibromialgica.it||1 April 2017||Terme di Sirmione|
Expectations from the Network
This is a very interesting Association that encourages relationships between different Countries and cultures and it is an opportunity to achieve the recognition of the disease by the EMEA. However, it is very important to help the patients understand and live with the disease. Finally to achieve good working relationships in order to win the battle.